Looking For Other Moms/Dads Of SPD Kids Struggling In The Chicago Area

by Stephanie
(Evanston, IL)

We live in Evanston and we are looking to meet other families who are dealing with SPD issues with their child. We feel so alone and it is so scary.




None of our friends understand and our families are clueless as to what we go through on a daily basis.

We would love to find others to connect with.



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Oct 20, 2022
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starstarstarstarstar 		SPD seeker/adhd
by: Val

Very interested in meeting other parents in Northwest Indiana/Chicago
area who deal with this as well. Anyone aware of a group? Or interested in starting one?
Dec 17, 2021
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starstarstarstarstar 		Twenty-One Senses
by: Rebecca Klueg

Hello All,

I am so happy you started this chat. Finding people who are going through and know what sensory processing disorder is can be so helpful. I work with a local nonprofit that helps families who have children with sensory processing disorders. We offer free monthly webinars, sensory-friendly hours (so you know where your child will be most at ease) and so much more.

To learn more you can visit our website:
twentyonesenses.org

Again I am so happy you have started this chat, being understood is an important part of getting through all of the struggles sensory sensitivities can present. I hope this information is helpful for you.
Oct 08, 2021
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starstarstarstarstar 		INTERESTED IN MEETING OTHERS WITH SENSORY PROCESSING KIDS
by: Anonymous

Grandmother of child with sensory processing issues, very very new to this. We live in Chicago-Evanston and interested in being in contact with others.
please call 847-772-8448
Nov 03, 2019
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starstarstarstarstar 		Twins w/ spd?
by: Jen

Single mom of twin boys who are speech delayed,and may have spd. their pedestrian gave me a referral for an evaluation turns out my insurance does not cover developmental delays. I'm trying to figure out what to do.

The boy's are in daycare but its not working out so im trying to find alternate care for them before the director tells me they cannot care for them anymore. I'm so stressed out, upset,and hurt. I feel defeated hopeless.i am just trying to get them the help they need.
Aug 14, 2019
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starstarstarstarstar 		boy 7
by: Ula

Are there people here who have SPD kids and speak Polish ?
Aug 09, 2019
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starstarstarstarstar 		Parent Group
by: Teresa

I am a mother of a soon to be 3 yr old with sensory seeking SPD. Saw interested parents and would love to plan a discussion at the very least. Would also love to hear from the recent post from the anonymous parent if 10 yr old who is doing great! Please all interested email me! Edison.tara@gmail.com
Jun 18, 2019
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starstarstarstarstar 		Meet up
by: Anonymous

My wife and I have a 10 year old that was diagnosed with SPD at a young age and is doing great. We would be happy to share our experiences if you decide to get together.
Jun 17, 2019
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starstarstarstarstar 		moving forward
by: Kara

Since there has been some recent activity here, maybe we can get this group going again. Anyone have ideas about a meet-up or other ways of communicating?
Jun 15, 2019
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starstarstarstarstar 		Interested
by: Sarah

I am also interested!!! Stilll active or meet up group?
Jun 08, 2019
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starstarstarstarstar 		Spd
by: Nickey

Hello is this group still active?
Mar 24, 2019
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starstarstarstarstar 		Looking to connect with others
by: Anonymous

I'd like to connect with other parents as I navigate schooling with my 4 year old who has some sensory issues. Is this group still active?
May 10, 2018
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starstarstarstarstar 		Chicago area connections
by: Kara

I'm not sure if this group is still active, but if so, I would love to join. I have recently figured out that my 3.5 year-old son has some sensory processing issues. It is a huge relief to have a name for what we have been dealing with, and now I'm looking forward to connecting with others who are encountering similar challenges. Kara, North Center; knrunner@gmail.com
Mar 17, 2017
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starstarstarstarstar 		Preschool
by: Anonymous

My son will be 3 in the summer. Preschool starts in the fall. I'm concerned.
Nov 21, 2016
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starstarstarstarstar 		Need Chicago speech therapist recommendation, please!
by: Anonymous

Looking for a Chicago-based speech therapist who is experienced in dealing with SPD (my friend's son is 5 years old) and who accepts BCBS. Thanks in advance!!
Sep 21, 2016
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starstarstarstarstar 		Adhd therapist or counselor
by: Anonymous

I am not familiar with the Beverly Oaklawn area. My friend has a grandson who is in his late teens that has ADHD and they are looking for a specialist in that area
Sep 15, 2016
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starstarstarstarstar 		SPD support
by: Ana

I am the mother of a 23 month old with SPD and would love to connect with other parents in the same situation. As you know some days are harder than others and we could all use a little support.

I am in Chicago so if anyone is interested in play dates let me know- anafernandez2250@gmail.com.
Aug 27, 2016
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starstarstarstarstar 		support group?
by: Auro

Is there a parent support group in Evanston? My girlfriend has a 5 year old with SPD and is desperate for a caring community and/or fellow parents that can lend some support. Please email me at draaurorachang@yahoo.com! Thank you!

Aurora
Jun 29, 2016
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starstarstarstarstar 		Looking to me moms in Chicago/suburbs
by: Val

I have 3.5 year old son with sensory issues. Would love to reach out and meetup for a playdate with other
Moms.
May 13, 2016
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starstarstarstarstar 		My Spd 5 yr old boy
by: Anonymous

Hi everyone Im a mom with a almost 5 yr old boy who has SPD this has been a challenging year trying to find help. I researched alot till I was able to receive the appropriate help for my son. He's been in Therapy for almost 4 months now and Im starting to find way to help him cope with the anxiety. If anyone has questions or would like to chat about ways to help one another please email me Thank You! gemacapilla1@gmail.com
Feb 03, 2016
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starstarstarstarstar 		Help for Kids with SPD
by: Martha

Hello,

I have two kids with sensory processing disorder and I live in suburban Chicago. I also have the disorder myself. Understanding the struggle and the help that we need, I recently wrote a book called The Sensory Processing Anthology, available on amazon.com, barnesandnoble.com, Barnes and Noble bookstores and other select bookstores. I wrote this book with technical oversight from occupational therapists, developmental optometrists, audiologists, and mental health professionals. The book presents SPD in a holistic manner with dysfunction described not by each individual sense, but by each type of disorder. The book provides a practical understanding of sensational kids and hundreds of comprehensive strategies to handle challenging behavior and nurture a positive family dynamic. Hope this helps!
Feb 01, 2016
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starstarstarstar 		Son with SPD
by: Lara

Hi, we are currently in the Morton grove area and I have a son with SPD. He is attending the district blended preschool program and I do not believe they are meeting his needs. We are looking for suggestions for other preschool programs in the Chicagoland area and willing to travel as well as other families to connect with for support and play dates. Feel free to contact me if interested. My email address is laradadelberg@gmail.com.
Jan 22, 2016
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starstarstarstarstar 		4 year old boy with SPD
by: Melissa

We live in Buffalo Grove and have a 4 year old with SPD. Would also love to connect with anyone in our area, especially for play dates. My email is msamuelson77@gmail.com
Jan 13, 2016
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starstarstarstarstar 		Having SPD
by: Jessica

Hey, I'm 19 and I'm not a parent. I have SPD as well as ADHD. I was diagnosed when I was a kid and I guess I'd say my case was quite severe. I pretty much hit every box on the diagnostic check list. I am in college in Chicago at the School of Art Institute which I attend on about a full ride aside from room and board. I am working on my bachelor of fine arts degree and intend on going to grad school to study art therapy. (I say that because I want you guys to know that your kids are going to be okay). I found this page and I thought that maybe my perspective could help you and your kids. My email is walshjessica81@gmail.com.
Oct 09, 2015
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starstarstarstarstar 		3 year old with SPD
by: Rebecca

I'm in Evanston too. Please, anyone who wants an SPD-mom friend, contact me at rebeccawlaw@yahoo.com
Oct 09, 2015
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starstarstarstarstar 		In Evanston too
by: Rebecca

We have a 3 year old boy with spd
Sep 23, 2015
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starstarstarstarstar 		Bloomingdale Mother
by: Pam

Hello Everyone...I have an 8 year old boy with SPD. If anyone close to the area would like a buddy parent support please contact me at Fenix.inc@hotmail.com
Sep 03, 2015
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starstarstarstarstar 		SPD meetup
by: Anonymous

I would love to meet other parents who are going through the same thing. We live in Ravenswood. My 3.5 yr old son has SPD and it has been quite the struggle. I would love to share experiences and resources with others. My email is knwilson83@gmail.com -Kim
Aug 19, 2015
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starstarstarstarstar 		Play dates
by: Cynthia

I live in orland park . My 18 month old has spd. I'd love to.find some other moms who have children around or close to his age for play dates as well as advice and friendship for us mommys. My email ajo399@yahoo.com
Jul 21, 2015
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starstarstarstarstar 		NorthSide Moms
by: Anonymous

Hi my name is Cassie, I left a comment below awhile back. Maybe we can all meet somewhere to talk and support each other. My email address is Cassiejason@gmail.com and I live in Andersonvike. I will love to talk to other moms in the area about what's gojng on with my son. I feel a bit sheltered and isolated. I would love to meet other moms who understand and don't judgre.
Jul 21, 2015
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starstarstarstarstar 		Need Support and Conversation
by: Anonymous

Mom of 5- almost 6 year-old girl with major SPD + anxiety and I am desperate for conversation with people who relate. km@rschool.net
Jul 13, 2015
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starstarstarstarstar 		SPD support in Northern IL suburbs
by: Susan

We live in Libertyville and have a 4.5 year old with SPD and possible ADHD. I haven't been able to find any support groups in the area. Would be great to talk to some other parents going through this - how you deal with school, activities...everything. You can reach me at libertyvillemom8@yahoo.com

Thanks
Jan 13, 2015
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starstarstarstarstar 		Interested in Group
by: James F

Hi,
My wife and I would be interested in a group for sure.
We have a 5yo with SPD and really need support.
My e-mail address is jamefriz@juno.com if anyone has a group that is meeting. Thanks!
Dec 30, 2014
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starstarstarstarstar 		Looking for Support Group -Chicago
by: Anonymous

Hi Michelle,

I will be in contact - thank you so much!

Cassie
Dec 30, 2014
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starstarstarstarstar 		Looking to start support group
by: Michelle

Hello! I am an LCSW and a mom of a 2 yr old with sensory difficulties. Looking to start a regular support group with parents from the south side (Oak lawn, Mt. Greenwood, Beverly area). Please email me with any interest.
Thanks!
MichelleWood413@yahoo.com
Dec 11, 2014
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starstarstarstarstar 		Looking for a Support Group
by: Cassie

Hi I'm a mom of 2 year old with SPD, looking for a support group with other parents that share my pain/frustration. I live in Andersonville...please email me.

Cassiejason@gmail.com
Jul 22, 2014
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starstarstarstarstar 		Support Group
by: Anonymous

My 22-month old son was diagnosed SPD at 18-months. I've had to take him out of our tumbling class, Spanish class, and avoid any interaction with other children because he is very aggressive, biting, pulling hair, and hitting. I feel so isolated and need a support group to at least validate my feelings. Please let me know if anyone is in or around the Hawthorn Woods/Long Grove area. Thanks
Jul 11, 2014
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starstarstarstarstar 		SPD 3 year old Boy
by: Anonymous

Looking for other moms and kiddos to
Connect with

Cmurokh@yahoo.com
Apr 26, 2014
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starstarstarstarstar 		In need of good pediatrician referral and support
by: Anonymous

Hi, I'm from the Chicagoland NW suburbs. I have a 22 month old with undiagnosed sensory issues. In search of pediatrician or specialist who truly understands this condition. Also, I would like talk to parents who deal with SPD; or some type of support group. SPD is hard to explain to others. Please e-mail me anytime: subchimom@gmail.com
Apr 22, 2014
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starstarstarstarstar 		SPD
by: Sandra

Hi this is Sandra, I have a 4 year old daughter with SPD. I would like to speak with other parents and share information and support on how to better help my child through this. I reside in the Western Suburbs of Chicago. thanks
Sandra - sandritaj81@gmail.com
Mar 24, 2014
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starstarstarstarstar 		single mother of sensory seeking twins (3.5 yo)
by: Anonymous

Kate in Evanston is khoffman@northwestern.edu -- my email cut off the last message. Would love to hear from others.
Mar 24, 2014
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starstarstarstarstar 		4 year old SPD
by: Andrea

I would LOVE to start a support group as I am drowning in SPD frustration/anxiety etc..I live in Highland park
Please email me at Ajoye2006@gmail.com
:))
Mar 18, 2014
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starstarstarstarstar 		single mother of sensory seeking twins (3/5 yo)
by: Kate

I live in Evanston, IL and am desperately seeking other parents of sensory seeking young children. My children are adopted and it is only recently that I have come to learn about sensory seeking as I only knew SPD as sensory avoidant and thus presumed my children didn't have it until a preschool social worker alerted me to this. It is very isolating as we cannot do much and friends and family have mostly disappeared, little enthusiasm left for my children with "bad" behavior. The children endanger themselves when left with babysitters so I need to take them to meet other parents. Perhaps together we can come up with strategies for helping our children live richer lives?
Feb 15, 2014
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starstarstarstarstar 		Rogers Park
by: Anonymous

Hello,

My partner and I have a 2 year old with SPD. We would love to meet other parents and kids that have similar challenges. We are in the Rogers Park neighborhood in Chicago.

Thanks!
Jul 06, 2013
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starstarstarstarstar 		Mom of and spd child in the South Suburbs
by: Anonymous

Hello, I have a 2yrs old recently diagnosed and has a speech delay. I am definitely looking for some support. I live in the south suburbs and would not mind coordinating a playdate for the kids and a parent meetup. Please feel free to e-mail me. Selena_smith@sbcglobal.net
Jan 10, 2013
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starstarstarstarstar 		Looking for Chicago Moms
by: Anonymous

I also would love to connect with other Moms in Chicago. We live in lakeview and have a 2 year old with SPD. I am just starting to think about what this is, how we will approach schooling, and most of all how I can be her best advocate. If anyone else is nearby and has children around the same age it would be great to touch base. camp710@gmail.com
Dec 02, 2012
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starstarstarstarstar 		Happy to chat or meet up!
by: Sarah

We have a 5-year old boy with SPD. He has been working with OTs twice-a-week for the past year. His challenge areas are auditory defensiveness, some social awkwardness and gross motor incoordination. We've learned a TON in the past year (ups and downs!) but he is currently doing really well in his preschool. We're happy to talk about our journey and always happy to meet new friends. Hang in there, everyone! These kids are SO worth it!

Email: sarahmontzka@me.com
Oct 09, 2012
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starstarstarstarstar 		Tactile defensiveness
by: Anonymous

Hi. My daughter, almost 4, was just diagnosed with SPD, Tactile Defensiveness. I am losing my mind and would live to join a support group for this. I live on the south side of Chicago. If anyone knows of any groups please let me know. Thank you.
Sep 17, 2012
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starstarstarstarstar 		Dance/Movement therapist
by: Leslie

Hello! I am a Dance/Movement therapist. I specialize in SPD disorder. In a session I utilize play, dance, art, and music to help the child understand what is happening both internally and externally. I am located in Evanston, but travel to child's home. Please feel free to contact me beyondgrace@gmail.com Thank you!
Aug 31, 2012
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starstarstarstarstar 		Son with SPD turning two
by: Christy

Hello! I am in the southwest suburbs looking for a group/people to connect to that understand what it is like!

Gweek86@hotmail.com

Thank you!
Aug 17, 2012
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starstarstarstarstar 		SPD connecting
by: Anonymous

Hi,

I posted here last year looking for other moms with kids dealing with SPD. My son, now 7, was diagnosed at 3yrs old and he has improved tremendously with OT, Speech Therapy and attending the Hope Institute Learning Academy in Chicago, a CPS contract school dedicated to helping kids on the autism spectrum, SPD and Speech. I am moving to Rogers Park at the end of August and would love to connect with others and share experiences, therapist info and anything else. I remember starting out going crazy researching this thing called SPD and feeling alone. But it is AMAZING the progress my son has had. You can contact me at encourageville@gmail.com
Aug 17, 2012
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starstarstarstarstar 		mom of SPD kid
by: Borislava

I don't know if you're still interested in connecting with folks, but I live/work not far from Evanston and my son receives OT, Speech and Psychotherapy at Beth Osten and Associates. He's 3 1/2 and I recently became single; I'm looking to connect with people who are raising an SPD kid and can relate to the challenges that brings.
My email address is borislava1@yahoo.com
Aug 17, 2012
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starstarstarstarstar 		Looking for MDs, Occ Therapists
by: Dan

If anyone has a doctor and/or therapists in Chicago they would recommend please email me. Thank you

danp71@yahoo.com
Aug 04, 2012
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starstarstarstarstar 		Southwest burbs
by: Belinda

Hi, I see these posts range in dates but if there are folks out there still checking this out I'm looking for other parents Who have kids with spd in The Chicago area too. Its hard to walk this path on our own. If anyone is currently meeting up or knows of support groups would definitely appreciate the info! reyesbelinda04@gmail.com
Jan 09, 2012
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starstarstarstarstar 		I'm in Evanston too
by: Lauren

My 6.5 year-old was just diagnosed with SPD. I also live in Evanston. I am a single mom and I am dealing with this by myself. Would love to have someone to talk to. My e-mail is windycity3333@yahoo.com
Oct 01, 2011
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starstarstarstarstar 		Good doctor?
by: Jennifer

My son was diagnosed at 1 and went through food therapy, OT, PT, and speech. He is now 5 and displays a lot of anxiety about going to school. How did the anxiety piece get diagnosed for anyone who is experiencing the same? I wanted to find a pediatrician, dentist, and therapist that have experience treating kids with SPD. I live in the northwest suburbs, if anyone has any helpful info, please email me at jenmd3@gmail.com
Aug 23, 2011
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starstarstarstarstar 		Rogers Park - 2 yr old
by: Anonymous

@ Christine - I too live in Rogers Park and work from home. We are looking for other kids to play with if you are interested.
jennifermbryson@yahoo.com
Mar 14, 2011
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starstarstarstarstar 		Include me please!
by: Anonymous

My son will be 6 this month and has SPD. Would love to meet other parents. We live in Hyde Park.
indiraharper@yahoo.com
Feb 25, 2011
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starstarstarstarstar 		Please email me
by: Anonymous

Hi,

My son is going to be 5 next month. He was just diagnosed with SPD last week. I was also looking for someone who is going through the same thing as we are. We live in Ravenswood, not far from Evanston. Please email me at summer73@gmail.com

Thank you so much
Dec 31, 2010
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starstarstarstarstar 		Chicago
by: Anonymous

Our son (4 years) has SPD. Please email me tami.mclaine@yahoo.com

We are in the Chicago area.
Dec 31, 2010
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starstarstarstarstar 		hi
by: Anonymous

Hi! I just came across this. I am the mother of three and my two younger children have SID and my youngest also was diagnosed with being on the Autism Spectrum. You are not alone! I live in the western suburbs of Chicago.

Nov 22, 2010
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starstarstarstarstar 		Reply: Moms in Chicago Area
by: Anonymous

HI,

I have a son that is 6.5 with SPD, ADHD and Anxiety. We live on the Southwest Side of Chicago and would love to hear from others.

I had to remove my son from the public school system due to the school refusing to use his medical diagnosis and labeling him as Emotionally Disturbed in order to send him to a Therapeutic School.

We decided to homeschool because we could never label our child with something that didn't fit. It has been very challenging but he is progressing slowly. At least he doesn't call himself a bad boy everyday like he did when he came home from the other school.

If anyone wants to talk: jmeschab@wowway.com

Thanks,

Jamie
Nov 21, 2010
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starstarstarstarstar 		Moving to Chicago with a 3 1/2 yr. old with SPD
by: Jen

We are moving to Chicago with our 3 1/2 yr. old who has SPD. What resources or schools should we look into for our son? Any guidance would be greatly appreciated.

My email is jennifer.m.decastro@gmail.com

Thank you,
Jen
Oct 12, 2010
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starstarstarstarstar 		Rogers Park Mother
by: Christine

Hi My 3 year old little man was also diagnosed over the summer with SPD even though I knew there were problems since he was an infant. I am a single, work at home mother life is very frustrating with a young man with SPD. First people don't believe you since everyday is different to people thinking that my little boy is just a "boy." Love to hear from everyone- feel alone also!
Oct 09, 2010
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starstarstarstarstar 		chicago mom
by: jesicca

Hi Stephanie.I live in Chicago- southwest side. My son is 9 and has SPD. I would love to share any information I have that may be helpful, and I would also love to have someone to talk to who's in a similar situation! e mail me! gjesicca29@att.net
Oct 07, 2010
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starstarstarstarstar 		SPD struggles
by: Anonymous

Hi Stephanie,

I too have a little boy, almost 4, who has recently been diagnosed with SPD. I feel the same way as you. We are having problems at school already. He is working with an OT and it has helped. Would love to chat with you and swap notes. lucasmani.maria@gmail.com

all the best,
Maria
Sep 24, 2010
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starstarstarstarstar 		regular school...but outside help
by: Anonymous

my son is in regular school...he is in OT and sees a counselor as well as ST (for his reading and writing...not for verbal) and he does this all once a week outside of school. his school is however reviewing all of his reports that i turned in and we are waiting to hear whether or not they feel he may qualify for in school therapies.
Sep 23, 2010
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starstarstarstarstar 		public school options
by: Anonymous

Are your kids in public school and getting some special services?
Sep 10, 2010
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starstarstarstarstar 		We liv near Chicago
by: Anonymous

HI. I HAVE A 5.5 YEAR OLD WITH SPD. I LIVE IN RIVER FOREST . MY E-MAIL IS meledio@gmail.com. Please e-mail me anytime. Our family has been dealing with this since we found out at the age of 2. You are not alone. Take Care !!

P.S. - We also have a second grader who had a few sensory issues but nothing like the above mentioned.
Sep 04, 2010
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starstarstarstarstar 		i am in the area!
by: Anonymous

hello!

i like in round lake beach and am happy to talk as well!

my email is ewainscott@hotmail.com!

I have a little boy who just turned 6 with anxiety and spd and am always looking for other to share thoughts/frustrations/triumphs with! best of luck!
erin
Sep 04, 2010
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starstarstarstarstar 		To Stephanie in Evanston, IL
by: Marti

Hi Stephanie!

I live in Glenview, Illinois and have two children with SPD. You can reach me at martiohler@yahoo.com. I will be happy to help answer your questions or provide support in any way I can.

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