Can SPD Go Away?

by Karla
(San Diego )

My baby!

My baby!

Hello. I have a 5 year old daughter who has been diagnosed with SPD. To say her sensory issues were extreme would be putting it lightly.




Everything bothered her. Her socks, her shoes, her underwear, seams on her clothing, doing her hair, taking baths, certain smells, the sun in her eyes, certain sounds.

She wasn't answering to her name. She refused to eat. She would gag on certain textures. She would throw these fits that were just out of this world. Sound familiar? The list just goes on and on and on.

She went to Occupational Therapy for 9 months, until our insurance ran out (my husband was laid off). It took awhile but in time she started doing better. Slowly we saw changes in her and then one day it dawned on me that she seemed suddenly "normal."

She wasn't screaming and crying about everything. She wasn't biting herself, pulling out her hair or pinching and scratching her skin. She was wearing clothes on a normal basis. She was eating food again. She was even hugging and kissing me sometimes. She was doing great!

But this has left the question, does she still have SPD? Her sensory issues only flare up in times of stress and even then it's nothing we can't handle. Her socks may still bother her on some days and she gets frustrated more intensely then most kids her age but on the most part we have our kid back! She's like a whole new creature.

So, I'm curious.... can SPD go away?





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May 01, 2019
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Share what has worked?
by: Anonymous

To the lady whose therapist has helped your daughter...

I’m the 58 yr old woman who is new in this group. I live in a small town. I don’t think there is a therapist here of any type. If you could please share what worked, I would be forever I. Your debt.

Apr 27, 2019
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I’m 58 have also been diagnosed w/Lupus n Fibromyalgia
by: Anonymous

I’m a 58 year old woman with 2 normal sons. I have had SPD since birth. I’m not even sure what kind of stimulation sets it off but, it causes me to lose a lot of valuable time. No one knows I have this but me. I’ve never talked to anyone about it.

I just found information on SPD last night for the 1st time. What a relief to know I’m not alone. My mother was the only one who has ever acknowledged it. When I was a child she slapped/spanked me when she would catch me. After reading the above statements though, I can’t help but wonder if aluminum in vaccines did cause it. I’m allergic to antiperspirants. They also contain aluminum.

In adolescence, I became severely allergic to zippers and metal buttons on clothing and costume jewelry. Other allergies became worse ie seasonal and I became allergic to the sun.

In my early 40’s I was diagnosed with SLE. (Systemic type Lupus) though it’s in remission. I also have fibromyalgia.

I can’t help but wonder if all of these things are related since they involve the immune and nervous systems?

Aug 15, 2018
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by: Anonymous

Ah, good question! Once you have SPD you will always have SPD. However, it DOES appear to go away in the sense that therapy worked to treat your daughter's symptoms. Therapy worked!! Yes, it did! That is the difference. That is why it appears to have gone away.

Her neurological system is better integrated now. The connections have "re-wired" and she is much, much more functional. She is regulated!! This is HUGE. I am so thrilled to hear such a wonderful success story! The therapy worked!

So, NO it cannot go away, but as with anything the symptoms can decrease and be controlled through therapy. This has happened for her! That was the goal. Three cheers.

And, you are right... it will still crop up during times of stress, illness, unfamiliar situations, etc. It is like... ummm... let's say, having a seizure disorder. Once you have this disorder you always will have it, but it can be controlled, in that case, through medicine. Or, having any neurological disorder in which the symptoms are controlled... most through medicine, but you always have it. ADHD? Controlled through medicine, but you always have ADHD. Make sense?

Your daughter may indeed be ok for quite some time, or forever. But, don't be surprised if it does appear once in a while in a mild form with various stressors or at various ages (i.e, teenager). Sometimes our kiddos need a little "tune-up", that's all.

You obviously did a great job mom!! And she and her therapist did their job. Fantastic! Hopefully, it stays at bay through various strategies you have learned, and the sensory integrative therapy she received! Count your blessings. I am so pleased. Success stories are so wonderful!!

Take good care.

Feb 26, 2018
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I have SPD
by: Anonymous

I am 14 and I have been told I have it, I don’t recon I do. each child has there own problem and mine was meant to be that when I was younger. I had symptoms of this but now it is not even there. that’s y I researched "does SPD go away".

I never had therapy after age 10 and I was showing signs when I was but now that I’m not and living a normal life the symptoms have gone away.

I am normal I don’t even like to admit I was diagnosed with it because it’s not there!!!

Oct 28, 2016
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I agree
by: Anonymous

Vaccines are designed to elicit a response from our children's immune system. Could it be, that in some children, the immune system responds in such a way that it attacks the central nervous system (fatty cells that line the nerves) resulting in communication problems between the cells.

Could it be that the aluminum in the shots is not shed as easily by some children's systems and affects the CNS. Very likely it could be the cause in some, perhaps not all cases. Each child is a genetically unique individual. No one can provide you 100% guarantee as to what will happen when they inject your child with a vaccine and how their body will respond.

In much of the research around autism and SPD, they are now saying that it looks like an over reactive immune system is affecting the Central Nervous System. Really. Well what is causing the over reactive immune system. Could it be vaccines that are designed to activate the immune system.

They will never admit this. Big Pharma. Big money. The world is not a nice place. Open your eyes and protect your children. Question the norm. Question political correctness. Watch the movie, "The greater Good"

Oct 24, 2016
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I have SPD
by: Anonymous

I actually am 15 and have had SPD since birth. My symptoms were so bad that i hated water touching me. I got treatments too and am glad to say that now i only have a few problems related to my disorder. I'm glad to hear someone else can say the same!

Jul 05, 2016
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More than Therapy
by: Anonymous

I think Therapy helps a great deal but something else is happening as your child ages. I doubt therapy alone is responsible. There is also a physiological change that is taking place as your child matures.

Sep 22, 2014
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confused
by: Anonymous

Do you really think it was just the therapy that cured your daughter? I am not convinced. I DO think that therapy is amazing and helps tremendously, but is that the only factor involved? Something is going on physiologically whether it is maturation or gut brain barriers or inflammation or auto immune deficiencies. And we do not know enough. We need to find out more information about this disorder. I will spend my life trying to help my son and other kids until we find out why.

Oct 08, 2007
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rejoice
by: Susan Ross

This is so encouraging, but it still lets us know not to let our guards down. Take what therapy has taught and use those strategies to continue in rough patches.
I am so happy that she is better right now!!!!

Oct 08, 2007
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Thanks!
by: Anonymous

Michele,
I just wanted to say thank you so much for answering my question. This has really helped me!
God Bless,
Karla

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