DESPERATE MUM IN NEED OF SOMEBODY TO UNDERSTAND!!!!!


(ENGLAND)

I have a 7 year old daughter, who has suffered all her life with sensory disorder. She has struggled from birth to wear clothes, underwear and shoes as she finds them awfully uncomfy and impossible to wear.Its a huge struggle getting her out of the house everyday and sometimes we end up staying in as it is too distressing for her.




I have received no support or understanding from Child & Family or her school.

She hasn't been in school for 3 Weeks now as she cant get any underwear or clothes on. This also means her anxiety has gone sky high.

She also has sleep problems, were she struggles to get to sleep and often wakes up after having terrifying night terrors. This also adds to her anxiety and makes everything worse.

Season changes are very difficult times for us as getting her into different clothes is a huge struggle and doesnt always happen. It could be winter and she would only want to wear her vest top. Socks and underwear are a big problems for us and she often doesnt wear either, shoes are also a problem and she wears the same ones all year round.


Im really desperate to find some help for my daughter so if you think that your child has any similar problems PLEASE PLEASE PLEASE comment on this.



Comments for DESPERATE MUM IN NEED OF SOMEBODY TO UNDERSTAND!!!!!

Average Rating starstarstarstarstar

Click here to add your own comments

Oct 30, 2014
Rating
starstarstarstarstar 		8 yr old daughter- clothes struggles
by: Anonymous

Thank you, all, for sharing what you have shared. I'm only at the beginning of the research for SPD. My daughter is frequently miserable because of her clothes problems. Shirts must be high -necked. Pants must be tight at waist. Shoes tied extremely tightly (to the point of leaving marks ) and must not slip. I homeschool so she doesn't have to be ready by a certain time. However, when it's time to hit the books or do chores, she is sometimes too miserable and can be a bear to be around because of her inner unhappiness tactilely. I definiltey need more tools! I will e-mail some of you and visit the blogs mentioned. Thank you!
Mar 14, 2011
Rating
starstarstarstarstar 		controlled by the senses
by: Anonymous

she needs to understand spd, mind, emotions and senses. you must help her become aware. direct her to look inside herself so she begins to understand her fears. she needs to understand fear and you need to not react negatively but if you do explain that u love them. she needs to learn of self esteem others it will get worse and she will hate herself and others will confirm it by calling her strange. basically she needs all the info so the she can start to understand herself. you as a parent can guide her to many info and tools, support, love. Do not think that she is too young for this info so dont hold back any wisdom from her.
Mar 05, 2011
Rating
starstarstarstarstar 		PLEASE HELP
by: .mandy from uk

My daughter is nearly 6 and for the past couple of years we have been having the same situation with clothes Some days are alot better than others. She struggles to wear any underwear we usually have to go through a dozen pairs before there is one that feels okay, but by this time she can be distraught. Certain items of clothing that have been okay one day will be almost unbearable to wear the next day. When we put socks on she becomes hysterical kicking out at me to take them off as quick as possible. She then gets so upset and says she hates herself and is stupid. It breaks my heart and i feel so useless. She has started to miss school as i cant get her to wear socks or shoes, The school have been really good and allow her to come in her slippers if they are the only thing she will wear. After reading about this SPD it has been like a light bulb switching on and that everything is falling into place. If anyone would like to get in contact who has the same problems my e-mail address is amandakingston@hotmail.co.uk
Feb 23, 2011
Rating
starstarstarstarstar 		us too again
by: Anonymous

i would love to talk to you more if our 2 daughters have the some of the same symptoms....we feel very alone in this. she is being robbed of her childhood. very sad for her. and for our family. ~e
Feb 23, 2011
Rating
starstarstarstarstar 		us too
by: Anonymous

my seven year old daughter has suffered from this for 3 years now....we are in the process of finding help....it is extremely difficult to parent her. it affects our entire family. she is the middle child. she has no learning disabilities, if anything she has high iq. seeking relief from this nightmare we have all been experiencing.
Feb 21, 2011
Rating
starstarstarstarstar 		SPD
by: Sarah

My son has a different kind of SPD, but I have found that exercise helps. Specifically swinging, and jumping on trampolines. Helps get rid of some of the anxiety that builds up.

If you have the ability to stay home with your child (or have a lot of family support), you might consider home-schooling your child. Your child would then be able to be educated regardless of the ability to dress in appropriate school clothing.

In my household, we have made changes to our morning ritual, and have included an excersise time in the mornings. This seems to help my son burn through some of the anxiety, and get to a better state of mind for the day.

sarah.vande@gmail.com
Feb 19, 2011
Rating
starstarstarstarstar 		Thanks!!
by: Anonymous

Thank You.
I will look at that now.
Feb 19, 2011
Rating
starstarstarstarstar 		Go to for decreasing tactile defensiveness
by: Steve Faherty

Go to www.developmentaldelay.net/page.cfm/135
Feb 16, 2011
Rating
starstarstarstarstar 		Thank You!
by: Anonymous

You dont know how happy i am to know that people understand. I would love to speak to you both and will do so soon. Its a great help just knowing that people have been through the same thing and that we are not alone.

Thank you ! x
Feb 15, 2011
Rating
starstarstarstarstar 		Hi, I'm in UK too
by: Anonymous

Hi,

I completely understand your situation. I live in Cumbria and have an 11 year old girl with exactly the same issues. Please contact me via my blog www.thetrialsoflivingwithSPD.blogspot.com if you wish. I am trying to find other likeminded mothers myself and would be happy to provide an ear to listen when needed.

Hope all gets better soon.
Feb 15, 2011
Rating
starstarstarstar 		I TOTALLY understand how you feel!
by: Danae@Believing Unbeliever

My son in 6yo with Autism & Sensory Processing Disorder. He is sensitive to things that touch him (among other things). The thing that helped the most with multiple issues he's had was giving him Three Lac, which is a probiotic to help with digestive issues. It was like he was a different person. He still is highly sensitive, we still have issues that you just have to tiptoe through, but he is much less sensitive. I would love to be able to share how we try to work through things like new shoes, etc. It may take work, & tears, but it can be done. Please feel free to contact me, I'm at http://www.danaefarias.com.

Sincerely,
Danae

Click here to add your own comments

Join in and write your own page! It's easy to do. How? Simply click here to return to SPD checklist.