13 month old just diagnosed with SPD

My 13 month old DD was just diagnosed by her OT with Sensory Processing Disorder. She is not walking or cruising furniture yet; just prefers to crawl and will pull up on furniture. She needed to be "taught" where her muscles are for crawling. She has also had severe constipation issues since about 5 months old and is on a high dose of lactulose medicine to help (though it is not helping).




She loves being cuddled; is not afraid of loud noises and generally goes with the flow, but does like her routine, especially at bedtime. The OT said she does not have an awareness of her muscles really in her legs for walking. Does anyone have any similar stories regarding kids with SPD and severe constipation? Is there a link between these two?



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Feb 10, 2013
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starstarstarstarstar 		Resource
by: Anonymous

Check out Gut and Psychology Syndrome by Dr. Natasha Campell-McBride . Although its a challenging way of eating for many, there is a wealth of information there and I know people who have greatly benefited from going that route. Also, I have a 13 month old daughter who still not crawling or pulling herself up, and is seeing an OT/PT for the first time next week, so we don't know the big picture yet. But she also had trouble eating anything textured and choked very easily and often until she had a couple of osteopathic treatments. She now swallows and eats normally for her age but still won't feed herself. Looking for answers!
May 01, 2009
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starstarstarstarstar 		reply to your query
by: Anonymous

My now 13 month old son, refused breast milk when he was born, I then tried formula, he started to react to that (exzcema). His older sister had severe exzcema. I then had no option but to try fresh bottled milk.He accepted that, but was constipated from two months onwards, he would scream at night, and his stools used to contain blood. My GP told me that he will grow out of being constipated once he started weaning.
From when he was two months until now he is toilet trained (for big poo). I know it sounds ridiculous but its TRUE. He screams in discomfort when he needs toilet. I have saved lot on nappies. My nephew, same age, goes through one hundred and fifty nappies in one month but my son goes through only about eighty.

He holds onto things for support to move around but loses confidence when encouraged to walk even with support by my family. HEALTH VISITOR SAID TO MASSAGE HIS LEGS DAILY WITH OIL, WHICH I DO, BUT HONESTLY SEE NO DIFFERENCE HE LOVES MOVING HIS KNEES TO GET FROM ONE PLACE TO ANOTHER.
Apr 17, 2009
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starstarstarstarstar 		15 month old spd
by: Anonymous

Hi my daughter has had neurological problems since birth has daily fits, muscle tone problems, developmental delay and suspected SPD due to the level of hypersensitivity to sound,smell touch. Problems with feeding gags on food, coughs and vomits a lot is on medication for reflux. Wont eat warm food or accept any textured food so only puree. Hasn't learned to stand yet or pull herself up on furniture or cruise. Has physio every 2 weeks, just been measured for orthotic boots.

My daughter has many issues with sensory processing disorder we are still under two neurologists. My daughter also had problems with constipation then runny nappies, but has lactose intolerance. It has been nice to hear from people with young children who have been through similar. Take care.
Apr 15, 2009
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starstarstarstarstar 		Sounds like mine...
by: Anonymous

Hi, I have a 17mth old daughter who was just dx with SPD and one of the main symptoms was severe constipation for a couple weeks then severe diarrhea for a couple days and that has been the pattern since the day she was born. I'm not sure what the relation is but I know there is one. I have had several OT, PT and her pediatrician confirm that, I just haven't been able to get a good explanation.

I do want to congratulate you on getting the dx so early. I am surprised we were able to get it when we did but hearing other stories I'm glad we caught it early. My daughter did not pull to a stand til she was 13mths, did not cruise until 15mths, finally took her first step on March 13th and began walking on April 3rd. It's been a long road but she is finally walking and I can thank her therapy for that. We also was able to get her dx with hypotonia, which is low muscle tone and now she wears SureSteps which really make things easier for her.

I was so excited to read your story because I couldn't find many about kids this young with the same problems as my daughter. I hope we can pass info along to each other as we receive it. Good Luck
Apr 11, 2009
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starstarstarstarstar 		constipation a key
by: Anonymous

Yes, I've heard of SPD with gut/digestive issues. What I'd be checking out is food in tolerances, particularly in tolerances to gluten (found in wheat and some other grains) and casein (a protein found in milk). Is This Your Child? by Doris Rapp is a great book to check out as a primer on gluten/casein issues.

--Nancy
www.sensorysmarts.com
Apr 10, 2009
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starstarstarstarstar 		SPD
by: Anonymous

My almost 13 month old is not pulling up yet or cruising so he has an appt. the end of this month for an eval. Please keep me posted on you DD. Best of luck!
Apr 10, 2009
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starstarstarstarstar 		Mine Too!
by: Anonymous

Hi - My daughter sounds just like your little girl! You are so lucky to see an OT while she's so young I had no idea what my daughter needed until she was 7 yrs.! She absolutely was constipated a lot. I think it might have been due to the fact she wasn't so active. She didn't walk until she was 18 months!

I would give her an almost daily 6oz bottle of gerber baby prune juice. That did the trick. And even now at 12 she can't eat alot of cheeses or dairy and not have a green apple with it to keep her system in check, now she doesn't even think about it she assumes they just go together!

My daughter is doing very well and her SPD symptoms have reduced greatly over the years she is very intelligent and learned how to be a good student. She works very hard at school and has made honor-roll again and again. So don't dismay... everything will work out.

best of Luck

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