SPD or not?? Please Help

by Jodi
(Wisconsin)

I have a 12 month old daughter that seems to have many of the same symptoms as I have read. Since she had a high fever at 13 days old, that's when all her problem started. They did a spinal, checked urine, and blood and couldn't figure anything out.

Since she was hospitalized, she started projectile vomiting. When she was 5 months old she fell off the growth chart. She started losing weight so we took her to Childrens Hospital. We did feeding tubes with her. She had a G Tube put in. They thought she had cows milk protein allergy. They tested her for that and it came back negative. She is behind on her gross motor skills. She is not crawling or pulling her self up. She tries to pull herself up. She is at a 6-8 month old when it comes to eating food. She refuses most of the time. She doesn't hardly drink from a bottle anymore. She will usually only drink 20-60 ml per feeding. She loves to put things in her mouth and chew on them. Just not food.

I am starting to wonder that when they did her spinal tap if they didnt hit a nerve or something or cause all of this to happen. It all started after her spinal tap. She has a hard time gaining weight despite being on a 30 cal/oz formula and getting a night drip for 11 hours! She sees a speech therapist weekly. She goes for weight checks weekly and sees a physical therapist every other week. She is 12 months old and weighs 16 lb 9 oz.

If anyone has answers for me or suggestions I would truly appreciate it. I don't know what else to do to help her. She also has a heart defect called Atrial Septal Defect.